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National Institute of Health — Genetic and Rare Disorders Information Center A wealth of information about rare diseases, including links to other sites, NIH’s Office of Rare Disease’s website also contains information about clinical trials and links to patient support groups.
National Institute Neuro Disorders/List of Disorders Disorders page is arranged alphabetically.
Guidelines for Reporting and Writing about People with Disabilities The Life Span Institute hosts this page, which provides information about appropriate terminology when writing or reporting on individuals with disabilities.It maintains a database with a information about over 1100 disorders; descriptive pages include include links to organizations that provide information, referral and support.NORD also maintains a database of organizations and one for orphan drugs. The guidelines were developed by the Research Training Center on Independent Living.Internet Resources for Special Children This website has organized the disability-information world into categories, ranging from Adaptive Equipment to Support and Assistance. Maternal and Child Health Bureau (MCHB) MCHB is a bureau of the U. Department of Health and Human Services Health Resources and Services Administration.
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